6 unique stories from people touched by epilepsy

Moments by Seer is an interview series seeking to spread awareness about epilepsy.

Epilepsy is a neurological disorder that affects at least 50 million people worldwide. Not only is it one of the world’s oldest recognised conditions, but, today, it still remains misunderstood, discriminated against, and life-threatening. Moments by Seer was filmed to help change all this – to spread awareness, educate the public, and break the stigma.

Through six interviews, we explore how epilepsy impacts and affects people differently and what we can do to help. If society has a basic understanding of this, then we can help normalise the lives of those living with epilepsy.

We will upload one interview, each week, starting February 2, 2021.

 

You never know which new experiences will trigger a seizure.” – Petra

Petra was diagnosed with epilepsy as a child and experienced tonic-clonic seizures. This type of seizure is what most people think of when they think about a seizure – a person loses consciousness, muscles stiffen, and the body jerks uncontrollably.

Fortunately, Petra has been seizure-free since 2007. However, like with many other people living with the neurological condition, Petra struggles with the unpredictable nature of seizures.

Petra is sharing her story to help others understand what epilepsy is about, strengthen society’s awareness about epilepsy, and help end the stigma and misconceptions that often are associated with it.

Everyone’s experience with epilepsy is different. This is Petra’s story.

Watch on Instagram Watch on Facebook

 

If you don’t laugh about it, you’ll cry.” – Kate

Kate was diagnosed with epilepsy at a difficult time in her life – she was going through chemotherapy for Hodgkin’s lymphoma when she had her first seizure in a restaurant. Kate’s perseverance and strength throughout this time in her life is truly inspiring. She is now cancer-free and manages her epilepsy with medication.

Kate is sharing her story to help others understand what epilepsy is about, strengthen society’s awareness about epilepsy, and help end the stigma and misconceptions that often are associated with it

Everyone’s experience with epilepsy is different. This is Kate’s story.

Watch on Instagram Watch on Facebook

 

Where you can, trust yourself and listen to your body.” – Brendan

Brendan has juvenile myoclonic epilepsy (JME). People with this type of epilepsy experience myoclonic seizures and, more often than not, tonic-clonic seizures.

Brendan manages his epilepsy by avoiding seizure triggers such as stress, alcohol, and lack of sleep. You can easily imagine how difficult avoiding these triggers could be for adolescents growing up and just wanting to live a normal life like their peers – but for many people living with epilepsy, this is the reality.

Brendan is sharing his story to help others understand what epilepsy is about, strengthen society’s awareness about epilepsy, and help end the stigma and misconceptions that often are associated with it

Everyone’s experience with epilepsy is different. This is Brendan’s story.

Watch on Instagram Watch on Facebook

Meet Fiona, image of Fiona from her interview in Moments by Seer

“It’s so nice to meet someone who knows what it’s like.” — Fiona

Meet Fiona. Fiona’s husband, Rodney, has epilepsy and she is here to tell us how epilepsy has impacted her, as a carer, and partner. Together, Fiona and Rodney have navigated many challenges – explaining epilepsy to their son and learning how to educate employers that don’t understand seizures were two obstacles that they faced.

“It’s so nice to meet someone who knows what it’s like.” A significant moment on Fiona’s journey was when she met a woman with epilepsy at her son’s gymnastics class. To communicate with someone who understood epilepsy on a deeper level made the world of difference for Fiona. However, if society was more educated about epilepsy and if there was less of a stigma attached to it, then perhaps she could have shared this moment, or something alike, with someone sooner.

Epilepsy organisations and support groups play an important role in connecting people affected by epilepsy – Fiona reached out for advice and highly recommends it to others too.

Fiona is sharing her story to help others understand what epilepsy is about, strengthen society’s awareness about epilepsy, and help end the stigma and misconceptions that often are associated with it. Support her by sharing this story with someone who might not know a lot about epilepsy – one share can make a big difference.

Watch on Instagram Watch on Facebook

 

“Don’t let anything get in the way of doing what you want to do.” — Mickey

Meet Mickey. Mickey has juvenile myoclonic epilepsy (JME) which is a fairly common epilepsy syndrome occurring in approximately 5-10% of people with epilepsy. If you’re looking for a little motivation or inspiration, Mickey is someone you want to hear from – his optimistic attitude is contagious and it has helped him get to where he is today.

Today, Mickey is a small business owner, he passionately promotes learning seizure first-aid amongst his employees, and everyday he strives to live his life unrestricted by epilepsy.

Mickey is sharing his story to help others understand what epilepsy is about, strengthen society’s awareness about epilepsy, and help end the stigma and misconceptions that often are associated with it. Support him by sharing this story with someone who might not know a lot about epilepsy – one share can make a big difference.

Watch on Instagram Watch on Facebook

 

Help spread awareness and end the stigma

Moments by Seer was designed to be shared. There are messages for people with and without epilepsy in these interviews.

You can help make a big difference by sharing these ‘Moments’ with your network. 

Thank you to the following epilepsy organisations for your support. If you need advice or support related to epilepsy, reach out to your local epilepsy organisation here.